What feels like forever ago when Michael was a baby and instead of living day by day we were going ounce by ounce never going more than 2 days without seeing a medical professional of some kind I came across a wonderful group of friends at
DrGreene.com and an amazing amount of support from around the world. I'd head off to an appointment at Primary Children's and knew I had a group of friends with me "in my pocket" I learned how to be an advocate, which questions to ask, how to communicate my concerns, questions and wishes to his medical team from Monday night chats. Okay, there was a lot more than Monday nights but they were my favorite. Hmmm, maybe has something to do with me enjoying night shift now?
Technology has changed, social media has changed and now I quite literally still carrying around the same group of friends (plus a few others I've collected over time) in my pocket. I've been known when I'm facing something that seems like I'm alone to take a deep breath and realize that I have a pocket full of support. Cracked screen, worn out keyboard and all.
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